Twilight Journal

Afterward : Saint Lucy’s Day

December 13th marked Santa Lucia Day— the quiet celebration of a child carrying light into the dark. This reflection is about waiting, tending, enduring. Not rushing to joy, but honoring the long night that makes it necessary. The small flame matters most before it becomes a fire. This season, don’t skip to the ending. Carry the candle. Sit with the dark.

Afterward: Farewell

Five years ago, I was told I had two left. This morning, I sit by the fire, sunlight touching snow, whispering my goodbyes. This reflection is not about dying. It is about seeing clearly. About choosing love over fear. About discovering that what remains is radiant. If these words find you in your own hard season, know this: There is nothing to fear.

Interview With Bill

I was asked six questions about living with ALS. What came out wasn’t answers—it was something closer to a way of seeing. This reflection is about loving what is, even when it breaks you. About changing the channel from fear to something wider. About realizing that nothing is separate—and that how we act shapes everything. Not despite this life. Because of it.

Morning: an American Jisei

A jisei, or jisei no ku, is a beautiful Japanese tradition: a poem composed near the end of life, a quiet reflection from the threshold. I, too, must seem to step away for a moment now. But we will soon recognize each other again, laughing and running like children through the tall, bright grass. -Bill